Time For A Check Up

I last had a hospital appointment in June, three lovely long months ago.  Since then I’ve been deliberately postponing them.  I’ve received monthly letters from my Pulmonary Hypertension team inviting me along for a check up.  I turned down June, I turned down July, I turned down August, I eventually agreed to go along in … More Time For A Check Up

Tests at the Brompton

Pulmonary Hypertension is a very rare condition, which unfortunately means that despite great advances in the last 20 years, there is still a lot that is unknown about the disease.  Having spent a couple of days at the Royal Brompton Hospital this week, and having completed lots of tests for them, I am still not … More Tests at the Brompton

A Muddle

A fellow PH blogger (Gem) once noted that when she started writing a blog, things suddenly started getting “interesting”.  I’m beginning to see what she means.  I made the decision to start a blog in December, and things have not gone that smoothly since!  I was expecting to be writing this next blog from the … More A Muddle

Is my PH getting worse, or is this a normal blip ?

After being so ill when first diagnosed with Pulmonary Hypertension, my biggest fear in the world is being that poorly again.  Unfortunately PH is a progressive disease, so at some point it is inevitable that my PH will worsen.  The hope, therefore, is to spot this change before it damages my heart too much and … More Is my PH getting worse, or is this a normal blip ?