The First Noel

I was awoken on Christmas morning by a symphony of squeals and shouts, and a herd of elephants running up and down the stairs.  It was still dark outside. 🙂  Half-asleep, I stumbled down the hall to find my eldest nephew a-jumping and a-leaping, excitedly screaming “Santa has been!”.  And his younger brother frantically shaking … More The First Noel

Looking Back

The other evening Phil and I had a date night.  In our own home. 🙂  We dressed to the nines, decorated the room with (battery operated! 😛 ) candles, and cooked a delicious Mexican feast.  Later, over Chocolate Orange fudge cake, we started chatting about our year.  Reflecting on 2019.  Looking back.It’s become a bit … More Looking Back

The Unexpected

I’ve been keeping something to myself for a few months now.  Something unexpected.  Something nice.  Something a little confusing.  For three and a half months, I’ve been watching and waiting and wondering and wishing.  I’ve been monitoring and second guessing and speculating and hoping.  But all in my own head, alone.  I’ve not dared to … More The Unexpected

Reaching Old John Again

Mention ‘Bradgate Park’ to anyone who has lived in Leicestershire and their face will light up.  It’s my home county’s pride and joy, its crown jewel, its ‘David Attenborough’.  Everyone loves it, adores it, treasures it.  Everyone has memories and tales and stories to share.  It is one of the shire’s high points… quite literally.  … More Reaching Old John Again

Moving Out

Last month I had to move back to my childhood home.  Back to my teenage bedroom, my Mum’s home-cooked dinners, my old village haunts.  For two weeks I slept in my single bed, enveloped by brightly coloured walls, and surrounded by photos of my high school days.  Meanwhile Phil remained back at our house alone.  No … More Moving Out

Strength In Numbers

Before I got my diagnosis of PVOD, I’d been immersed in the world of Pulmonary Hypertension for three years.  Deeply immersed.  I read blogs by fellow PHers, followed the latest research, and was a member of two global Facebook groups for patients.  Each day I’d read and comment and learn from posts with questions about … More Strength In Numbers

The Finish Line

Phil and I were on television last week.  Yep our little faces featured on actual real TV!  Ok, it was only for two seconds… and we were at the very edge of the screen… and I had another person’s hand in front of my face.  But nonetheless, we still got very excited when we spotted … More The Finish Line