Wanderlust

It was the first day of our holiday.  Early afternoon.  My eyes were sleepy from the 5am start, and my body weary from the 424 miles drive north.  As we crossed a humpback bridge, we were suddenly greeted by a picture-postcard scene of Scotland.  A gushing alpine river, lush green mountains, and glorious (and unusual!) Scottish … More Wanderlust

Bursting My Bubble

I arrived at Harefield in a bright mood.  The sun was shining, I’d spotted ten Red Kites en-route, and had met a friend for lunch beforehand.  Moreover with my recent positive test results suggesting stability, I was confident I wouldn’t need to be reactivated on the transplant list just yet.  But four hours later, I … More Bursting My Bubble

Tests, Tests, Tests

I’ve spent far too much time visiting hospitals these past three months.  My recycling bin is full of appointment letters, the veins in my arms are feeling sorry for themselves, and I still keep finding remnants of heart monitor stickers that I miss each time I shower.  I’ve had ten visits in the past ten … More Tests, Tests, Tests

Relying On Wheels

I struggle to walk.  Since developing Pulmonary Hypertension, I can’t get very far on my own two feet.  For thirty-odd years I could walk and run and skip and gallop…. until the day I suddenly couldn’t.  In one sleep, in one twelve hour period, in one night… I lost the ability to plod about.  And although … More Relying On Wheels

An Unexpected Loop on The Transplant Rollercoaster

I wasn’t expecting it to be an interesting hospital appointment. Just a routine check-up at Harefield. A myriad of tests, chips for lunch, hours of filling time in the waiting room, before a “Hello, keep plodding along” from the team. Same as normal, nothing controversial; so I travelled down alone. When I last chatted to … More An Unexpected Loop on The Transplant Rollercoaster