Before I was put on the lung transplant list, I didn’t really know anything about it. I had no reason to. I had a couple of Facebook friends who’d been through the process, but that was the extent of my knowledge. At the time of signing up, I hadn’t really thought in much detail about … More Is It Better To Know More?
Five years ago, I never would have considered sharing so much of my life. My Facebook posts were infrequent one-liners. My travelling blogs were only shared with our closest. I wondered why people overshared or posted so many photos or disclosed all the tiny daily details. Ultimately a private (and slightly insecure 🙂 ) person, … More The Radio Interview
We’d originally planned an active week in Norfolk staying in the Bumblebee. It was to be our longest trip so far in the campervan. We’d booked the campsites, joined the Camping & Caravanning Club, arranged two oxygen deliveries. We’d researched dog friendly beaches for Lottie, read up on nearby English Heritage sites to visit, googled … More From One Living Room… To Another
I’m lucky. Since going on the transplant list, very little in my life has had to change. Whilst waiting on the list, some patients have to move house to live in the city of the transplant hospital… Or have to desperately fundraise the 100k needed to pay for the operation… Or have to stay hooked … More Staying Close to Harefield
I’ve not been myself for eight weeks now. Eight frustrating long weeks. During my favourite season of the year, at the point where my diary is chock-a-block full of plans… I have instead spent most days lying about in my pyjamas. If I’m honest, this has turned into the summer of the sofa. 😦 The … More The Summer Of The Sofa
Seven years ago, Phil made the most spontaneous decision of his life. He bought us tickets to watch England play cricket… in Australia… in three weeks time! Although the night before we’d made a tentative (and drink fuelled) decision to spend a year travelling the world, we had no plans. At all. Now mere hours … More Surviving The Pink Ball
I was nervous on the drive down to the campsite. Camping with my family for a whole weekend. Forty-eight hours of living under canvas with my lively and opinionated closest ones. There seemed to be more reasons why it would be a disaster than a success. So when the rain started to fall as we … More Camping With My Family
I’ve been waiting for a year now. Thirteen months in fact. Thirteen -unbelievably quick, speeding by- months. Its been over a year since I took that terrifying call to hear if I’d been accepted on to the transplant list. It’s been over a year since I signed the forms agreeing to accept new lungs if … More One Year On The Transplant List
When Phil and I were dating, we loved to visit an abandoned piece of history. A fort, a ruin, a tower, a monument, a gun battlement. If one was spotted on the horizon whilst out walking, we’d change our route and make a beeline. We’ve hiked up hills, scrambled around cliff edges, and trekked across … More Bingeing On History
When I was first diagnosed with ‘Pulmonary Venous Occlusive Disease’, I asked my consultant how much time I had left. He screwed his mouth up, scrunched his forehead, and pulled a ‘bad news’ face. In that one reaction, I knew it would be distressing. And I also knew I wasn’t ready to hear that. So … More The Prognosis
We Can Adjust The Sails 