Yesterday they mentioned the T word to me for the very first time. The T word- too scary to be called by it’s full name yet. The T word- a small word but signalling the scariest, biggest operation possible. The T word- only ten letters long, but the start of the most frightening battle for … More The T Word
When I was little I went to swimming lessons every week for many years. I loved swimming lengths up and down, but my favourite part was when we got to do exciting things like diving for the brick at the bottom of the pool, or playing water polo, or even treading water whilst watching the … More Treading Water
Pulmonary Hypertension is a very rare condition, which unfortunately means that despite great advances in the last 20 years, there is still a lot that is unknown about the disease. Having spent a couple of days at the Royal Brompton Hospital this week, and having completed lots of tests for them, I am still not … More Tests at the Brompton
A fellow PH blogger (Gem) once noted that when she started writing a blog, things suddenly started getting “interesting”. I’m beginning to see what she means. I made the decision to start a blog in December, and things have not gone that smoothly since! I was expecting to be writing this next blog from the … More A Muddle
After a difficult few months, I was booked in for a procedure to get a definitive answer about whether my PH was progressing, or if this was just a normal blip. I’d not normally be so keen to have a Right Heart Catheter (RHC)-fiddling with wires inside your heart whilst you’re awake, is not the … More A Right Heart Catheter
After being so ill when first diagnosed with Pulmonary Hypertension, my biggest fear in the world is being that poorly again. Unfortunately PH is a progressive disease, so at some point it is inevitable that my PH will worsen. The hope, therefore, is to spot this change before it damages my heart too much and … More Is my PH getting worse, or is this a normal blip ?
Leaving the Brompton after a month in hospital was quite scary. I had become quite reliant upon the nurses and the security of daily doctor’s rounds, and so was therefore terrified and concerned about whether I would be safe at home. To be honest, I would have happily stayed there longer! However walking through my … More My PH Journey So Far – The Last 2 Years
I was a healthy child, a healthy teenager and a healthy early adult. I rarely had to visit the doctor and was never allowed a day off from school for being ill! Up until recently, I’d only had two hospital visits in my entire life- the most dramatic being a painful sprained ankle whilst jumping … More My PH Journey So Far – Getting the Diagnosis
We Can Adjust The Sails 