The T Word

Yesterday they mentioned the T word to me for the very first time. The T word- too scary to be called by it’s full name yet.  The T word- a small word but signalling the scariest, biggest operation possible.  The T word- only ten letters long, but the start of the most frightening battle for … More The T Word

Treading Water

When I was little I went to swimming lessons every week for many years.  I loved swimming lengths up and down, but my favourite part was when we got to do exciting things like diving for the brick at the bottom of the pool, or playing water polo, or even treading water whilst watching the … More Treading Water

Tests at the Brompton

Pulmonary Hypertension is a very rare condition, which unfortunately means that despite great advances in the last 20 years, there is still a lot that is unknown about the disease.  Having spent a couple of days at the Royal Brompton Hospital this week, and having completed lots of tests for them, I am still not … More Tests at the Brompton

A Muddle

A fellow PH blogger (Gem) once noted that when she started writing a blog, things suddenly started getting “interesting”.  I’m beginning to see what she means.  I made the decision to start a blog in December, and things have not gone that smoothly since!  I was expecting to be writing this next blog from the … More A Muddle

Is my PH getting worse, or is this a normal blip ?

After being so ill when first diagnosed with Pulmonary Hypertension, my biggest fear in the world is being that poorly again.  Unfortunately PH is a progressive disease, so at some point it is inevitable that my PH will worsen.  The hope, therefore, is to spot this change before it damages my heart too much and … More Is my PH getting worse, or is this a normal blip ?