A fellow PH blogger (Gem) once noted that when she started writing a blog, things suddenly started getting “interesting”. I’m beginning to see what she means. I made the decision to start a blog in December, and things have not gone that smoothly since! I was expecting to be writing this next blog from the … More A Muddle
After a difficult few months, I was booked in for a procedure to get a definitive answer about whether my PH was progressing, or if this was just a normal blip. I’d not normally be so keen to have a Right Heart Catheter (RHC)-fiddling with wires inside your heart whilst you’re awake, is not the … More A Right Heart Catheter
After being so ill when first diagnosed with Pulmonary Hypertension, my biggest fear in the world is being that poorly again. Unfortunately PH is a progressive disease, so at some point it is inevitable that my PH will worsen. The hope, therefore, is to spot this change before it damages my heart too much and … More Is my PH getting worse, or is this a normal blip ?
Leaving the Brompton after a month in hospital was quite scary. I had become quite reliant upon the nurses and the security of daily doctor’s rounds, and so was therefore terrified and concerned about whether I would be safe at home. To be honest, I would have happily stayed there longer! However walking through my … More My PH Journey So Far – The Last 2 Years
I was a healthy child, a healthy teenager and a healthy early adult. I rarely had to visit the doctor and was never allowed a day off from school for being ill! Up until recently, I’d only had two hospital visits in my entire life- the most dramatic being a painful sprained ankle whilst jumping … More My PH Journey So Far – Getting the Diagnosis
We Can Adjust The Sails 