In the world of illness, it takes a long time to get answers. Ideally, if someone becomes poorly, they should be able to see their doctor the next day… tests should be done then and there… and doctors should meet together urgently to discuss the patient’s case. But in reality, these processes take much longer to … More Searching For An Answer
We’d originally planned an active week in Norfolk staying in the Bumblebee. It was to be our longest trip so far in the campervan. We’d booked the campsites, joined the Camping & Caravanning Club, arranged two oxygen deliveries. We’d researched dog friendly beaches for Lottie, read up on nearby English Heritage sites to visit, googled … More From One Living Room… To Another
I’ve not been myself for eight weeks now. Eight frustrating long weeks. During my favourite season of the year, at the point where my diary is chock-a-block full of plans… I have instead spent most days lying about in my pyjamas. If I’m honest, this has turned into the summer of the sofa. 😦 The … More The Summer Of The Sofa
I’ve had a great start to 2017. Throughout January and February, my health has been stable, so I’ve taken advantage of my plateaued condition by filling the calendar. For me, it’s important to make memories, see people, live life whilst I still can. A catch up, a night away, a day trip, a dinner party. Something … More A Month of Illness
I’d got it in to my head that I was deteriorating. I was conscious that this time last year my health had shot rapidly downwards, so when I started to feel ‘different’, I assumed that history was about to repeat itself. For two months, from the end of October to the start of December, I … More Nervous, Nervous, Nervous
When I was little I went to swimming lessons every week for many years. I loved swimming lengths up and down, but my favourite part was when we got to do exciting things like diving for the brick at the bottom of the pool, or playing water polo, or even treading water whilst watching the … More Treading Water
After being so ill when first diagnosed with Pulmonary Hypertension, my biggest fear in the world is being that poorly again. Unfortunately PH is a progressive disease, so at some point it is inevitable that my PH will worsen. The hope, therefore, is to spot this change before it damages my heart too much and … More Is my PH getting worse, or is this a normal blip ?
I was a healthy child, a healthy teenager and a healthy early adult. I rarely had to visit the doctor and was never allowed a day off from school for being ill! Up until recently, I’d only had two hospital visits in my entire life- the most dramatic being a painful sprained ankle whilst jumping … More My PH Journey So Far – Getting the Diagnosis
We Can Adjust The Sails 