Strength In Numbers

Before I got my diagnosis of PVOD, I’d been immersed in the world of Pulmonary Hypertension for three years.  Deeply immersed.  I read blogs by fellow PHers, followed the latest research, and was a member of two global Facebook groups for patients.  Each day I’d read and comment and learn from posts with questions about … More Strength In Numbers

Bursting My Bubble

I arrived at Harefield in a bright mood.  The sun was shining, I’d spotted ten Red Kites en-route, and had met a friend for lunch beforehand.  Moreover with my recent positive test results suggesting stability, I was confident I wouldn’t need to be reactivated on the transplant list just yet.  But four hours later, I … More Bursting My Bubble

An Unexpected Loop on The Transplant Rollercoaster

I wasn’t expecting it to be an interesting hospital appointment. Just a routine check-up at Harefield. A myriad of tests, chips for lunch, hours of filling time in the waiting room, before a “Hello, keep plodding along” from the team. Same as normal, nothing controversial; so I travelled down alone. When I last chatted to … More An Unexpected Loop on The Transplant Rollercoaster