It is the day after yesterday. The day after the fun. The day after the meeting and hugging, the laughing and teasing, the catching up and reminiscing. The day after the singing and talking until the lungs couldn’t cope. The day after the walking and moving until the body got weak. The day after the … More The Day After Yesterday
I’ve had a great start to 2017. Throughout January and February, my health has been stable, so I’ve taken advantage of my plateaued condition by filling the calendar. For me, it’s important to make memories, see people, live life whilst I still can. A catch up, a night away, a day trip, a dinner party. Something … More A Month of Illness
Exactly three years ago today, I was lying in a hospital bed in London. The most poorly I’d ever been; I couldn’t lift my arms or sit up unaided. A week earlier, a doctor had confirmed that I had Pulmonary Hypertension. I’d never heard of it, and I wasn’t ready to learn about it. I was … More The Card That Changed Me…
Sometimes life throws you curve balls. We can be happily swimming along the river of life, and suddenly the waves start battering us, rocks stand in our way, crocodiles eye us up for dinner. Life is hard for a while, we struggle to keep our head above water, we desperately doggy paddle to avoid the … More An Unexpectedly Strong Summer
One of the worst parts about being ill is when I am on a decline. For six months I could feel myself deteriorating every day. Slowly being able to do less and less. Slowly getting more and more breathless. Slowly getting weaker and weaker. I felt helpless. It is a scary experience, as you are … More Enjoying Some Good Weeks….
When I was working I used to keep track of my life in my head. I didn’t need a diary, I just about managed to work out where I was supposed to be and when. I didn’t really plan too far ahead, so the months calender in my head was sufficient. At the beginning of … More Juggling Fun and Rest
What a difference a week makes. This time last week, I was feeling breathless, sick and weak, everything was taking me so much time to do and my activity level was slowly dwindling back to zero. My transplant referral had knocked me down emotionally, and together they were threatening to steal my hope and positivity. … More Getting Oxygen
Leaving the Brompton after a month in hospital was quite scary. I had become quite reliant upon the nurses and the security of daily doctor’s rounds, and so was therefore terrified and concerned about whether I would be safe at home. To be honest, I would have happily stayed there longer! However walking through my … More My PH Journey So Far – The Last 2 Years
I was a healthy child, a healthy teenager and a healthy early adult. I rarely had to visit the doctor and was never allowed a day off from school for being ill! Up until recently, I’d only had two hospital visits in my entire life- the most dramatic being a painful sprained ankle whilst jumping … More My PH Journey So Far – Getting the Diagnosis
We Can Adjust The Sails 