Before I got my diagnosis of PVOD, I’d been immersed in the world of Pulmonary Hypertension for three years. Deeply immersed. I read blogs by fellow PHers, followed the latest research, and was a member of two global Facebook groups for patients. Each day I’d read and comment and learn from posts with questions about … More Strength In Numbers
Phil and I were on television last week. Yep our little faces featured on actual real TV! Ok, it was only for two seconds… and we were at the very edge of the screen… and I had another person’s hand in front of my face. But nonetheless, we still got very excited when we spotted … More The Finish Line
A few days before our annual pilgrimage to my hubby’s homeland, Phil and I spent a fun evening planning our upcoming trip. Over homegrown barbecued vegetables and sparkly tonic, we poured over a map of the Isle of Man and got excited. We reminisced and laughed and googled and researched… and arranged the holiday ahead. … More Wiped Out By The Waves
When I was a child, my family had one of those guides to campsites in Great Britain. It was chock-a-block full of advertisements for places to camp all over the country. Hundreds and hundreds of listings from large holiday parks with nightly entertainment, to small fields with just a lowly toilet block. My brother and I … More The Best Bit Of Summer
It was the summer of 2016. Phil and I were driving along, listening to commentary of an exciting cricket game. The score was close. Phil was screeching in excitement, banging the steering wheel, breath held at every ball. The radio suddenly announced that the match would over-run to day five, with tickets being offered at … More Runs and Wickets and Lovely Biscuits!
I adore eating. I always have. There’s not a lot of food that I don’t like, and even less that I won’t try once. I think about it far too much. My meals are often planned a day ahead. I always have to pre-discuss where we’ll grab food if I’m meeting friends around noon. I … More The Longest Meal
It was the first night of our trip to Center Parcs. The rest of the Marshall clan hadn’t yet arrived, so my little family of three were exploring. Whilst Phil was talking to reception, Lottie the dog and myself sat outside watching the world go by. And that world was full of children… and sport… … More The Other Path
My Pulmonary Hypertension consultant is on maternity leave. I’ve not seen her for nearly a year. She took over my care when I was diagnosed with PVOD (Pulmonary Venous Occlusive Disease), and so we’ve been through a lot in a few short years. She arranged for me to be rushed onto the transplant list when … More When The Consultant Is Away…
The last time I went on holiday with my Doodi, ‘Mmmbop’ was number one in the charts. Every car journey on that trip was accompanied by my siblings and I singing along loudly to the childish voices of ‘Hansom’ whilst it played on a continuous loop! My poor Dad sat grumbling in the driver’s seat, … More Twenty Two Years Later
It was the first day of our holiday. Early afternoon. My eyes were sleepy from the 5am start, and my body weary from the 424 miles drive north. As we crossed a humpback bridge, we were suddenly greeted by a picture-postcard scene of Scotland. A gushing alpine river, lush green mountains, and glorious (and unusual!) Scottish … More Wanderlust
