A Lockdown Confession

The side gate was left open so she wouldn’t need to touch anything. A chair had been strategically placed mid-lawn, which would be immediately quarantined afterwards. The washing machine and shower were ready for their upcoming decontamination duties. And the welcoming committee (Lottie 😉 ) had been locked inside, for fear of over-enthusiastic sniffing. Hair … More A Lockdown Confession

Hospital Appointments And The Coronavirus

I’m always a little nervous on the drive to hospital check-ups.  My head starts psychologically prepping itself for bad news, and the ‘What if’s…’ start circling my thoughts.  Even when I’m feeling in my best health, and am confident that my heart and lungs are doing well… there’s always a few butterflies as we drive … More Hospital Appointments And The Coronavirus

Bursting My Bubble

I arrived at Harefield in a bright mood.  The sun was shining, I’d spotted ten Red Kites en-route, and had met a friend for lunch beforehand.  Moreover with my recent positive test results suggesting stability, I was confident I wouldn’t need to be reactivated on the transplant list just yet.  But four hours later, I … More Bursting My Bubble

Tests, Tests, Tests

I’ve spent far too much time visiting hospitals these past three months.  My recycling bin is full of appointment letters, the veins in my arms are feeling sorry for themselves, and I still keep finding remnants of heart monitor stickers that I miss each time I shower.  I’ve had ten visits in the past ten … More Tests, Tests, Tests

An Unexpected Loop on The Transplant Rollercoaster

I wasn’t expecting it to be an interesting hospital appointment. Just a routine check-up at Harefield. A myriad of tests, chips for lunch, hours of filling time in the waiting room, before a “Hello, keep plodding along” from the team. Same as normal, nothing controversial; so I travelled down alone. When I last chatted to … More An Unexpected Loop on The Transplant Rollercoaster

Waiting And Guessing And Hoping

I’ve been stable for the past two years. 🙂 I’ve been incredibly lucky, and am incredibly thankful. I’ve crammed in excitement, filled up my photo album and created many many happy memories. Despite the uncertainty when first diagnosed, amazingly I’ve carried on living and loving life with Pulmonary Hypertension and Pulmonary Venous Occlusive Disease. However … More Waiting And Guessing And Hoping

A Less Scary A&E

It’s alarming how quickly health can change.  Despite living with Pulmonary Hypertension for five years now, it still shocks me that my body can dive down so suddenly and unexpectedly.  Wellness the days before, a packed calendar ahead, feeling good… until abruptly I don’t.  It’s happened again!  My body is having a downer. I hate … More A Less Scary A&E