Before I got my diagnosis of PVOD, I’d been immersed in the world of Pulmonary Hypertension for three years. Deeply immersed. I read blogs by fellow PHers, followed the latest research, and was a member of two global Facebook groups for patients. Each day I’d read and comment and learn from posts with questions about … More Strength In Numbers
Phil and I were on television last week. Yep our little faces featured on actual real TV! Ok, it was only for two seconds… and we were at the very edge of the screen… and I had another person’s hand in front of my face. But nonetheless, we still got very excited when we spotted … More The Finish Line
It was the summer of 2016. Phil and I were driving along, listening to commentary of an exciting cricket game. The score was close. Phil was screeching in excitement, banging the steering wheel, breath held at every ball. The radio suddenly announced that the match would over-run to day five, with tickets being offered at … More Runs and Wickets and Lovely Biscuits!
I adore eating. I always have. There’s not a lot of food that I don’t like, and even less that I won’t try once. I think about it far too much. My meals are often planned a day ahead. I always have to pre-discuss where we’ll grab food if I’m meeting friends around noon. I … More The Longest Meal
I spent yesterday backing up our photographs from the year thus far. Five months of memory making. I’m a happy snapper. I take shots of pretty much every visit or meet up or weekend excursion. And so my photo archive is wonderful evidence of how much I do or don’t get about. January took no time … More Moving Through The Gears
Last Monday I stood atop a mountain! An actual mountain! A mountain with rocks and boulders and mud blocking the route. A mountain in the middle of nowhere, that took hours for us to climb. As I sat up high, looking down at the tiny dots of candy floss sheep in the valley below, I … More I Climbed A Mountain!
Throughout these past few months, the latter half of summer, a little fear has niggled away at the back of my mind. For the majority of time it has remained hidden, forgotten; I rarely worry about the future. But it has popped up at every recent recovery day. Opening my eyes -feeling sick after a … More The Latter Half Of Summer
We have some solar powered fairy lights draped around the greenhouse in our garden. Throughout the winter months, they glimmer quietly and faintly, for just a wee hour, before shutting down and going back to sleep. However, come summer and sunshine, they are transformed. Beaming brightly all night long, they sparkle and shine, illuminating their … More Solar Powered Sarah
The first time we tried injera, Phil and I were unimpressed. We’d just arrived in Ethiopia, and the national dish was not winning us over. The vegetable curries on offer were yummy, but the large sour pancake -with the texture of a sponge- did not appeal. We topped up our plates with rice and chips … More Craving Ethiopian Food
I’m lucky. Since going on the transplant list, very little in my life has had to change. Whilst waiting on the list, some patients have to move house to live in the city of the transplant hospital… Or have to desperately fundraise the 100k needed to pay for the operation… Or have to stay hooked … More Staying Close to Harefield
We Can Adjust The Sails 