Nine years ago -this week- I collapsed whilst getting ready for work. Overnight my life changed. Completely and totally. Previously a busy and active primary school teacher, now I struggled to breathe and move and live. And no one knew why. For six difficult and exhausting months, I battled to subsist with my unfamiliar disabilities … More Happy Anniversary Lungs!
When I was first diagnosed with ‘Pulmonary Venous Occlusive Disease’, I asked my consultant how much time I had left. He screwed his mouth up, scrunched his forehead, and pulled a ‘bad news’ face. In that one reaction, I knew it would be distressing. And I also knew I wasn’t ready to hear that. So … More The Prognosis
I love a new year. There is so much potential, so much possibility, so many opportunities ahead. I love looking at my new blank diary and imagining all of the excitement that 2017 will contain. 365 days to be filled with craft and books and writing. Four seasons to be filled with catch ups over … More To Plan or Not To Plan
Last week I got a letter from Harefield Hospital. Since getting ill, I have collated a whole file of medical letters. Appointments, reminders for appointments, notes explaining what happened in the appointments, follow ups from points raised in the appointment. Having three hospitals wanting to see me regularly, I’ve now filled a large lever arch … More A Letter
We Can Adjust The Sails 