After being so ill when first diagnosed with Pulmonary Hypertension, my biggest fear in the world is being that poorly again. Unfortunately PH is a progressive disease, so at some point it is inevitable that my PH will worsen. The hope, therefore, is to spot this change before it damages my heart too much and … More Is my PH getting worse, or is this a normal blip ?
Leaving the Brompton after a month in hospital was quite scary. I had become quite reliant upon the nurses and the security of daily doctor’s rounds, and so was therefore terrified and concerned about whether I would be safe at home. To be honest, I would have happily stayed there longer! However walking through my … More My PH Journey So Far – The Last 2 Years
I was a healthy child, a healthy teenager and a healthy early adult. I rarely had to visit the doctor and was never allowed a day off from school for being ill! Up until recently, I’d only had two hospital visits in my entire life- the most dramatic being a painful sprained ankle whilst jumping … More My PH Journey So Far – Getting the Diagnosis
We Can Adjust The Sails 